Brothers living with incurable condition
A WAX-A-THON in aid of two young boys who are living with a degenerative incurable condition is set to take place to help raise essential funds to build a more appropriate home.
Brothers Conor (8) and Dean (6) Thompson are living with Duchenne Muscular Dystrophy, a progressive, muscle-wasting condition for which there is no cure.
Both enjoy a love of music, dancing, wrestling and outer space, but as their condition deteriorates, they are already struggling to do the things they love.
The lads are students in Gaelscoil Naomh Phadraig in Lucan, where Dean is classmates with Jane Clarke’s son Bobby.
“Dean is my son Bobby’s friend in school, and Conor is Dean’s older brother,” Jane tells The Echo.
“I only know the lads through the school and since becoming aware of their condition, we wanted to do something to help.
“They have a life-limiting condition that has no cure.
“They are raising money because the boys condition is progressive.
“They’re going to need to move into a bungalow, and basically kit it out with everything they need, so they can live their lives with some dignity.
“This is obviously not through choice, the family are raising funds because they have to.”
Build for the Boys is a campaign that was launched to build a future for the Lucan brothers.
Initially, a specialised mobility vehicle will be needed to transport the boys and their wheelchairs to and from school, social visits or other activities.
The Thompson family will then need to move from their home in Lucan, with funds raised going towards helping with extensive renovations to a property.
These renovations will facilitate movement and access for two full sized power chairs, with the essential facilities including ceiling hoists, profile beds, and wet rooms.
While €100k has already been raised, every donation will go towards ensuring Conor and Dean have a life of dignity and with a degree of independence.
On February 4, at 7pm in Lucan Sarsfields GAA Club, coaches and members of ABC Gym will take part in the Wax for the Boys to raise funds.
“Each of the waxers are getting sponsored, and they’re raising funds themselves,” Jane says.
“They’re going to be waxed on the night. There will be a raffle as well, we’re really just hoping as many people as possible turn up so we can make a bit of a night of it and raise these essential funds for two local lads.”
Some of the prizes up for grabs in the raffle are; in-car experience at Mondello Park, a Jule’s Day Spa pamper package, and a four-ball round of golf at Palmerstown house.
